Julia Snider's Fundraiser
I am running to Protect Kids with Epilepsy
Please support my Marathon for Danny Did Foundation
As many of you know Juno (my youngest) had her first seizure at 3 1/2 and continues to have them. She was formally diagnosed with epilepsy at 4 and now takes medication daily. She is getting close to 6 and continues to grow and thrive, but has had numerous breakthrough seizures and we continue to adjust and learn.
In October of 2024, we believe she had a seizure in her sleep, but were awoken to her screaming and the left side of her body was paralyzed for a couple hours (a seizure side effect of Todd's paralysis which we had not heard of prior to that day). We do not know how long she had seized for and are fortunate she woke up. Her dad and I recognized at that point we needed to monitor her, and our neurologist introduced us to the Danny Did Foundation. The Danny Did Foundation has been a wonderful resource and is a fantastic organization I want to help support in developing people's understanding of eplipsey and helping find monitors to give families some sleep at night.
I run for my own mental health, but also as a way to keep myself calm and present for Juno and her sister when Juno has a seizure. Juno loves to run as well, always cheering me on at races and often tagging along for short runs. Thank you for considering a donation to support my 26.2 mile Chicago Marathon run dedicated to those facing epilepsy.
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About Danny Did Foundation
Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.