Rachel Ryan's Fundraiser
I am running to honor Shea and to Protect Kids with Epilepsy
Caitlin Porter
I donated in support of this campaign.
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Allison Cappon
"Run Rachel run! "
$50
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Billy Ryan
I donated in support of this campaign.
$50
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Terry Gangemi
"Good luck in your run, Rachel! xo"
$50
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Steve Roll
"As someone with epilepsy, thanks for supporting this cause! "
$100
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John Pratt
I donated in support of this campaign.
$100
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Liz Moyer
"What a wonderful cause! So proud of you Rachie!"
$50
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Rachel Jones
"What a way to honor beautiful Shea. "
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Mark Ledtke
"Perfect way to honor Shea!"
$100
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Deanna Stawnychy
"Best of luck Rachel!! 👏🏻♥️"
$100
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Jennie Gemignani
"Thanks for doing this amazing thing, Rachel. đź’–đź’–"
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Alexa Zuniga
"Rachel what a beautiful way to honor Shea ❤️"
$50
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Melissa Stopka
"Thank you for honoring Shea! "
$100
West Herr CDJRF of Rochester
I donated in support of this campaign.
$100
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Carley Thomas
"You’re awesome "
$50
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Charlotte Moen
I donated in support of this campaign.
$100
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Alyssa Santana
"Go get em!!! In honor of shea đź’™"
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Elainne Martinez
"Way to go Rachel, incredible way to honor Shea. You are going to crush it!"
$20
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Bill Ryan
"His light shines on!"
$200
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Cornelius Callanan
"Happy to be donor #1 đź’Ş"
$100
Thank you for considering a donation to support my 26.2 mile Chicago Marathon run dedicated to those facing epilepsy.
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On October 12th 2024 a friend of mine Neil and his wife Laura lost their 4 year old son Shea to SUDEP (sudden unexpected death in epilepsy). Sometime in January Neil presented me with the opportunity to run a marathon in honor of his boy Shea, on the anniversary of Shea’s passing. So, on October 12th 2025, I will be running in the Chicago marathon on team Danny Did.
I didn’t see Shea all too often but when Neil would show up to the gym with Shea and his big sister Lida I knew my workout was second tier to chasing those two around. Shea was incredible, in all the best and wildest ways a 4 year old boy could be. That kid could make you laugh. Shea was a ball of light and energy and he had the ability to make your day the moment you saw him. I am so lucky that I got to know Shea.
I will be running to honor Shea, with hopes to raise money and awareness for SUDEP and epilepsy. Any donation is greatly appreciated.
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About Danny Did Foundation
Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.