Jonathon Foster's Fundraiser
I am running for Johnny V
Please support the Danny Did Foundation
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Adam Miller
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$25
A supporter of Jonathon Foster
I donated in support of this campaign.
My cousin Johnny passed away this fall due to SUDEP (Sudden Unexpected Death in Epilepsy). Johnny was a caring and joyous person, always sharing his passions and his humor with others. He always searched for the “spice” in life looking for spicy food and interesting places to visit and learn about. He could talk about extinct animals for hours and would always have new facts and animals organized in one of his infamous lists to share with me every time I saw him. He was a bright light in the world, and I will cherish the memories I have of watching “The Meg” and learning about Arthropleura with him.
Johnny was a fast runner, competing in sprint distances in Special Olympics, and as I understand it sprinting around the home soon after he was walking, but I first ran with Johnny in 2018 at the Epilepsy Foundation of Greater Chicago 5k in 2018 wearing a shirt he had asked for emblazoned with a running taco and the words "Don't Just Taco ‘Bout It," and so I am trying to live up to that by taking action and doing more than just "taco ‘bout it” and raising money for the Danny Did Foundation.
Thank you for considering a donation to support our 26.2 mile Chicago Marathon run dedicated to those facing epilepsy.
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About Danny Did Foundation
Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.