Amber Sexton

Amber Sexton's Fundraiser

I am running to Protect Kids with Epilepsy  image

I am running to Protect Kids with Epilepsy

Please support my Marathon for Danny Did Foundation

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$4,443 towards $2,750

This fundraiser and marathon is very near and dear to my heart. I am dedicated to putting in the hard work and fighting for kids living with epilepsy especially our own sweet girl Avryee!

Avryee had her first seizure at 10 months of age. She battles a severe form of epilepsy called Lennox Gastaut Syndrome. Avryee’s epilepsy is medication resistant which means her seizures do not respond well to medication. Avryee had brain surgery in 2022 and a VNS (vagus nerve stimulator) placed in 2025 and is still struggling with severe seizures despite five anti-seizure medications.

I would love for you to follow my journey and would be very grateful for the love and support in this cause!


#dannydidfoundation #avryeestrong #chicagomarathon

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.