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Jen McConnel's Fundraiser
Running to Raise Epilepsy Awareness
Please support my Marathon for Danny Did Foundation
I am incredibly proud to be running my first marathon in Chicago with the Danny Did Foundation. My goal is to help fundraise to support their incredible work in advocacy and community sustaining for those impacted with epilepsy. Danny Did provides my family, and so many others, with hope, information, and community connection, and I am excited to run with them.
I plan to post stories here about supporting my child on her journey, as well as the learning I continue to go through as an epilepsy mom. I'm also going to share details from my training, and information about epilepsy. This race is for my daughter, who is 1 in 26.
About Danny Did Foundation
Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.