I'm Running to Raise Awareness so NO Family Faces Epilepsy Alone

“Enjoy life because Danny did...” were the words I first read when I came across the Danny Did Foundation. We were referred by our Epileptologist to read their story and find inspiration into how to protect our own son against his nocturnal seizures, the most dangerous time to have a seizure. So often the transparency behind seizure related deaths isn’t always the first thing the doctors communicate with you. Most often loved ones find information regarding SUDEP (Sudden unexplained death in Epilepsy) after their child has passed. We were fortunate enough to be educated on SUDEP since day one of our son’s diagnosis. From there we found the Danny Did Foundation and received guidance into options for nighttime protection for Kellen. Our son, Kellen, was diagnosed with Epilepsy at age 5. He’s been battling uncontrolled seizures to this day at age 11. The medications, intellectual delay, hospital stays, doctor visits, endless test, frequent blood work, school calls and meetings, with a continuous need for being monitored is something Kellen endures daily. We continue to appreciate this foundation and the research and providing options to monitor children with seizures both night and day to bring parents and families peace of mind, families like us. Please consider donating towards the Danny Did Foundation in hopes of continuing to provide this peace of mind for parents, caregivers, and families like ours. I run for Epilepsy, I run for Kellen.

Psalm 119:105 "Thy word is a lamp unto my feet, and a light unto my path." - Praying God directs my every step and guides me along His path for my life and that He will do the same for you!

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.