Matthew Schamel

Matthew Schamel's Fundraiser

I am running to Protect Kids with Epilepsy image

I am running to Protect Kids with Epilepsy

Please support my Marathon for Danny Did Foundation

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$3,550 towards $4,000

I am running the Chicago Marathon in October for a cause that means a lot to me.

The Why –

  • My nephew, Shea Thomas Callanan, passed away in October of 2024 of SUDEP (Sudden Unexpected Death in Epilepsy.
  • Most of you reading this knew Shea. He was the most articulate, talkative, energy filled 4 year old I knew. He loved trucks, all of them. He loved his bike. He loved his family. He loved his cousins. He loved the lake.
  • One of my favorite memories of Shea is giving him a mohawk on our dock, as I have for our boys in the summer months. The mohawk has a known and proven impact on a boy’s personality, amplifying the mischievousness of their personality. Shea embraced this.

The What –

  • On October 11, 2026, with the encouragement of my family, I will be running the Chicago Marathon, in memory of Shea.Yup, 26.2 miles.Hopefully all of it. In running it, my hope is to play a small part in bringing awareness and funds to an organization working on preventing SUDEP.

  • Danny Did is an organization that started as a result of similar circumstances to Shea and his family. Their mission is to educate and bring resources to help prevent sudden deaths in epilepsy.
    1. https://www.dannydid.org

The Ask -

  • Here’s what I ask. Donate. Something, whatever amount you’re able. If you can’t donate, read up and consider other ways to help the organization.

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundations primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy. Danny Did Foundation takes its name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.