Michelle Lynn

Michelle Lynn's Fundraiser

Team Danny Did in the 2018 Bank of America Chicago Marathon image

Team Danny Did in the 2018 Bank of America Chicago Marathon

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$1,405 towards $1,500

My Run for Nadiya

After a long break, I will be returning to marathon running. I never thought I would run another marathon (after my last in 2012) but then in 2013 we brought home our first child, Nadiya. She has inspired me in many ways and one of which is to train for another marathon... the Chicago Marathon.

I will be running Chicago in honor of my daughter, Nadiya, who has complex partial epilepsy, which has been classified as intractable epilepsy since it was unable to be controlled successfully with medications. After trying more than six different medications, on being on more than one at a time, she currently has the best control (approximately 80% control) of her seizures on the ketogenic diet. She is a fighter, and an inspiration to us daily and does not let her disabilities be an excuse for her.

However in people with intractable epilepsy, there is a significantly greater risk of SUDEP (sudden unexpected death due to epilepsy). Sadly many people who have intractable epilepsy loose their battle due to SUDEP and I will also be running in memory of a friend's son.

Thank you,

Michelle

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation's primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families impacted by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects nearly 3 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people impacted by the disorder, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. The causes of death can vary and include drowning, other accidents and status epilepticus (prolonged seizures). In addition, thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed in public and in medical circles. The name of the Danny Did Foundation originates from the last line of Danny Stanton's obituary, written by his dad: "Please go and enjoy your life. Danny did."The Danny Did Foundation greatly appreciates our runners' time and commitment in supporting those who face seizures. Thank you for raising funds and awareness for epilepsy and SUDEP.

Please visit: Danny Did Foundation