Tony Kustwan

Tony Kustwan's Fundraiser

I am running a Marathon in support of the Danny Did Foundation. Your gift will help protect kids with Epilepsy. image

I am running a Marathon in support of the Danny Did Foundation. Your gift will help protect kids with Epilepsy.

Please consider supporting my 26.2 miles for those suffering with seizures.

We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
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$1,850 towards $1,750

In 2017 my 16-year old son was in a pretty bad car wreck that totaled the car he was driving to soccer practice. Luckily no one was seriously hurt. After a bunch of diagnostic tests were done and 2nd opinions, we found out that the car wreck was likely due to our son having had his first noticeable myoclonic seizure. We were actually very lucky that he had this serious accident otherwise his Epilepsy would have gone undiagnosed and potentially popped up at a later time and he may have more seriously hurt himself or others. Needless to say, now my mission is to learn more about Epilepsy and to support others impacted by it. When I found the Danny Did foundation and started reading up more on SUDEP, I instantly flashed back to the scary day of the accident and then the confirmation of our son’s diagnosis of epilepsy. My son was very lucky to have survived getting into a accident on the expressway going 70 miles an hour and totaling our car and being able to walk away. SUDEP happens in one child with epilepsy out of 4,500, and one adult with Epilepsy out of 1,000, per year. Although rare, SUDEP is a sudden fatal event in a person with epilepsy who may be otherwise healthy and what a terrifying thought! So I am running with TEAM Danny Did to in the Chicago Marathon to help raise money for research, help others with more severe cases of epilepsy than my son, and to bring more awareness to SUDEP. Please help me to help others with Epilepsy. Please consider donating $26.20, which i dollars for dollars the miles, I will be running in the Chicago Marathon in support for epilepsy and the Danny Did Foundation.