I'm excited to participate in my second Danny Did marathon and help support those suffering with seizures!
I first engaged with Danny Did as a student at Northwestern University serving on the executive board of our Dance Marathon. It was an honor to partner with Danny Did in raising more than $1.2M to help prevent Sudden Unexpected Death in Epilepsy (SUDEP). And dancing for 30 hours with 1,000 others was a great way to celebrate that achievement! I was touched by the Stanton family's story and dedication to honoring Danny's legacy so have stayed connected with the organization in the six years since.
As for my story with running, I went from "couch to marathon" when my little brother challenged me to join in racing the 2018 SF Marathon. What I expected to be a bucket list experience evolved into a passion when I discovered the joy, clarity, and health that distance running brings. The Chicago Marathon will be my sixth marathon in three years and first Major.
Thanks for your support of Danny Did!
About Danny Did Foundation
Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation’s primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures),thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy.
The Danny Did Foundation takes it's name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.