"So proud of you! "
I donated in support of this campaign.
"So inspired your dedication to your training, your family and your cause! "
I decided to run my first marathon with Team Danny Did in honor of my son, Drayven, who was diagnosed at age 4 (like Danny) with Generalized Epilepsy.
He is now almost eight and we have been on a roller-coaster of tests and medications to get his seizures controlled with the least amount of side effects. Each seizure feels like a set-back, but I am happy to announce that he will be two-years seizure free at the end of August!
He is still at risk for sudden unexpected death in Epilepsy (SUDEP), which is why we are so grateful to have a seizure monitor on him at night while he is sleeping.
Please consider donating to my team so the Danny Did Foundation can continue to grant families with these life saving monitors.
Click the link below to learn more about the Danny Did Foundation/SUDEP or you can watch a video of the impact the organization has had on those suffering from Epilepsy.
Chicago here I come!!!!!!!
About Danny Did Foundation
Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation’s primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures),thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy.
The Danny Did Foundation takes it's name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.