Colleen Cappitelli

Colleen Cappitelli's Fundraiser

Running with Sophie! image

Running with Sophie!

Please support my Marathon for Danny Did Foundation

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$2,250 towards $2,000

Thank you for considering a donation to support my 26.2 miles dedicated to those facing epilepsy.

The recent diagnosis of Intractable Epilepsy in my dear friend’s daughter has been life changing for her and her family. At only 4 years old, Sophie has faced inconceivable threats to her health and her "normal" childhood due to this relentless disease. Sophie, her younger sister Charlotte, Mom and Dad are true inspirations, bravely facing all the obstacles and unknowns inherent with an Epilepsy diagnosis. Thankfully, there are foundations like Danny Did, which provides an invaluable amount of support to children and families facing the similar and heartbreaking challenges that come alongside Epilepsy. With gratitude, I ask you to help support me in this venture to help raise funds for epilepsy awareness through the Danny Did Foundation

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton, in 2010, after the sudden death of their four-year-old son Danny, the Danny Did Foundation’s primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures),thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy.

The Danny Did Foundation takes it's name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.