I run for Jackson McDowell

I will run the Chicago Marathon on October 8^th and have chosen to raise funds for the Danny Did Foundation (https://www.dannydid.org/). Danny Stanton died in 2009 from SUDEP, or "sudden unexpected death from epilepsy," a complication all epileptics face.

Epilepsy is a personal issue for my wife Julie and me. Our 21-year-old son Jackson had his first seizure at 16, with no prior issues. He began taking anti-seizure medication and was fine until ten days before he left for college. He’s been on a rollercoaster ever since, his life on hold while undergoing testing and recently having laser brain surgery at Mayo Clinic for his drug-resistant epilepsy. He’s been unable to do most anything he enjoys—driving, hobbies, socializing, college life—and the medication has caused debilitating side effects like OCD and paranoia. We’ve found resources to be frighteningly-limited since epilepsy is different for every patient and because of the random nature of seizures, is often socially misunderstood.

Funds raised for the Danny Did Foundation provide funds for their continuing work in research, education, advocacy, and assistance for families like mine affected by epilepsy. Their mission depends on the support of donors like you. Can you help me raise my goal of $2000?

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation’s primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects 3.5 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures), thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy.

The Danny Did Foundation takes it's name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.