G. Dylan Apessos & Lauren Pfendt

G. Dylan Apessos & Lauren Pfendt's Fundraiser

26.2 Miles for the Danny Did Foundation! image

26.2 Miles for the Danny Did Foundation!

We really appreciate your support :)

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$3,542 towards $3,500

As you may know, I was diagnosed with epilepsy in 2021 and completed my first marathon in Philadelphia in November 2022. My fiancée Lauren Pfendt and I are training together to race in Chicago in October 2023 - almost two years to the day from my diagnosis - for the Danny Did Foundation. Your donations will help fund research for screening for and treating epilepsy to prevent SUDEP. Please consider donating and help us reach our goal of $3,500! Thank you and much love!
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About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation’s primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families affected by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects 3.4 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people with epilepsy, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. In addition to deaths caused by drowning, other accidents, and status epilepticus (prolonged seizures),thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed by medical professionals and in public discussions of epilepsy.

The Danny Did Foundation takes it's name from the last line of Danny Stanton’s obituary, written by his dad: “Please go and enjoy your life. Danny did.” We celebrate Danny’s spirit in every child and family we reach.