Rebecca Rudolph-Setzer

Rebecca Rudolph-Setzer's Fundraiser

Team Danny Did in the 2018 Bank of America Chicago Marathon image

Team Danny Did in the 2018 Bank of America Chicago Marathon

Make a donation towards seizure and SUDEP awareness and education

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$185 towards $1,000

One year ago my son Oliver had his first seizure. My husband and I were unaware of what a seizure could look like so I stood, frozen, feeling helpless as I thought he was dying. I've never been so scared in my entire life. That fear turned into anger in the emergency room after being told his seizure was "no big deal" and sent home with zero information about how to keep Oliver safe. I don't want another parent sent home without the information they need to know about seizures and SUDEP.

So please consider donating to the team to help the Danny Did Foundation reach their goals of seizure and SUDEP awareness and education. If anything, donate to watch me attempt to run a marathon ;)

Thank you,

Rebecca Rudolph-Setzer

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation's primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families impacted by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects nearly 3 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people impacted by the disorder, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. The causes of death can vary and include drowning, other accidents and status epilepticus (prolonged seizures). In addition, thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed in public and in medical circles. The name of the Danny Did Foundation originates from the last line of Danny Stanton's obituary, written by his dad: "Please go and enjoy your life. Danny did."