Alexandra Stolis

Alexandra Stolis's Fundraiser

Team Danny Did in the 2018 Bank of America Chicago Marathon image

Team Danny Did in the 2018 Bank of America Chicago Marathon

Alexandra Stolis

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$975 towards $1,000

Friends and Family -

I'm raising awareness about Epilepsy and SUDEP on behalf of my nephew, Stavros Farsatis, and the thousands of kids that are diagnosed with epilepsy annually. I'm no longer able to run the Chicago Marathon due to an injury...but I'm still on Team Danny Did!

Please consider donating to the Danny Did Foundation today - to help advance public awareness of Sudden Unexpected Death in Epilepsy (SUDEP); enhance the SUDEP communication model between medical professionals and families afflicted by seizures; and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Stavros contracted acute autoimmune encephalitis in July 2015 a few weeks before his sixth birthday, and as a result of his recovery from that disease, he now has seizures. Please see my nephew's story below, in my sister's words on the Living Well with Epilepsy blog, from November 2017. On behalf of Stavros and myself, I thank you for reading his story and for your donation.

https://livingwellwithepilepsy.com/2017/epilepsy-blog-relay/the-pharmacist-mom.html?utm_campaign=shareaholic&utm_medium=email_this&utm_source=email

xo, Alex

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About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation's primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families impacted by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects nearly 3 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people impacted by the disorder, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. The causes of death can vary and include drowning, other accidents and status epilepticus (prolonged seizures). In addition, thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed in public and in medical circles. The name of the Danny Did Foundation originates from the last line of Danny Stanton's obituary, written by his dad: "Please go and enjoy your life. Danny did."