Genevieve Meiners

Genevieve Meiners's Fundraiser

Team Danny Did in the 2018 Bank of America Chicago Marathon image

Team Danny Did in the 2018 Bank of America Chicago Marathon

Genevieve Meiners

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$1,686 towards $3,000

I am running the Chicago Marathon Sunday, October 7th, 2018 to raise money for the Danny Did Foundation in honor of Braxtin, the son of my dear friends Katie and Mark Gruber. Braxtin, who will turn 6 this October, was diagnosed with Dravet Syndrome, a form of Epilepsy, at just 2 1/2 years old. Everyday is a struggle for him, but you might not know judging from the smile on his face! Through the struggles, Brax continues to make strides and live each day to the fullest with the support and tireless efforts of his biggest advocates, his parents. He loves soccer, the Cincinnati Bengals, and all things Harry Potter! Through the many tests, sleep studies, doctors appointments, and medication changes, Mark and Katie are there every step of the way. They have recently taken Braxtin to meet Dawson, a Service Dog still in training that will soon be joining their family. Braxtin is an inspiration to me and to many. When I'm at mile 20 on race dayand want to quit I will think of Braxtin and how he never gives up!

#dannydid #teamBraxtin

About Danny Did Foundation

Founded by Chicago parents Mike and Mariann Stanton in 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation's primary mission is to prevent deaths caused by seizures. The Foundation advances public awareness of epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP), strives to improve communication about SUDEP between medical professionals and families impacted by seizures, and advocates for the mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths.

Epilepsy affects nearly 3 million people in the United States and 65 million people worldwide. One in 26 Americans will develop epilepsy during their lifetime. But what few people understand, including many people impacted by the disorder, is that seizures can be fatal. More people die as a result of seizures than from fires and sudden infant death syndrome (SIDS) combined. The causes of death can vary and include drowning, other accidents and status epilepticus (prolonged seizures). In addition, thousands of deaths occur annually from SUDEP, a fact that is little known and too rarely addressed in public and in medical circles. The name of the Danny Did Foundation originates from the last line of Danny Stanton's obituary, written by his dad: "Please go and enjoy your life. Danny did."