Bryan Lynch

Bryan Lynch's Fundraiser

Team Danny Did in the 2018 Bank of America Chicago Marathon image

Team Danny Did in the 2018 Bank of America Chicago Marathon

Bryan Lynch

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$5,801 towards $1,500

Please support my 26.2 miles to protect kids with epilepsy

I am running in this year's Chicago Marathon to support of two amazing things - The Danny Did Foundation ("DDF") and Teddy Lynch, my son. DDF promotes awareness of children's epilepsy and sudden unexpected death from epilepsy ("SUDEP), provides information to those with epilepsy and their families, and enhances communication within the medical profession on epilepsy.

My wife Kelley and I began supporting DDF about 5 years ago because a friend was on the board. Fast forward 3 years ago to Friday September 26th, a beautiful summer evening. Teddy, who was turning 5 in three days, was playing in our yard with his brothers and a couple of friends, and he had a grand mal seizure. When I came to him he was blue and far from conscious. I can say without question that nothing in my life was as scary as the next 10 minutes, and I pray that nothing will ever be. Teddy was rushed to the hospital and was discharged the following day. We understood little of what happened to our son that evening and felt there was little we could do to control the situation.

In the weeks and months ahead Kelley and I began to learn about children's epilepsy and came to learn (unfortunately first hand) what great work The Danny Did Foundation does to create awareness and assist those with epilepsy. Many children may have one unprovoked seizure, which does not mean that they have epilepsy, but in Teddy's situation he had a second seizure and was diagnosed with epilepsy shortly thereafter. There are many worthwhile and deserving organizations of which we are all aware. However, as we became educated about epilepsy and SUDEP we grew to understand that there are few resources dedicated to it, that it is much more common than people understand, and that there is little education or record keeping on its occurrence. Tragically, it can be fatal. There needs to be much more awareness of epilepsy and SUDEP which will go a long way towards furthering research and treatment.

Thanks for considering supporting me in my run for DDF and its missions to create awareness of epilepsy and SUDEP.