Denise Annecchino-Marck

Denise Annecchino-Marck's Fundraiser

I am running the Chicago Marathon in support of the Dup15q Alliance & the Danny Did Foundation. Your gift will help protect kids with Epilepsy, as well as provide support & promote awareness, research & targeted treatments for those with Dup15q. image

I am running the Chicago Marathon in support of the Dup15q Alliance & the Danny Did Foundation. Your gift will help protect kids with Epilepsy, as well as provide support & promote awareness, research & targeted treatments for those with Dup15q.

Please consider supporting my 26.2mi run as a way to honor & empower those children facing the daily life challenges of living & growing with Dup15q and Epilepsy.

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$4,082 towards $3,500

Hi & thanks for visiting my donation page! Our beautiful daughter, Antonina, has a rare genetic anomaly known as Dup15q. The partial duplication of her 15th chromosome is not inherited which makes it incredibly rare! Unfortunately, because of this, she faces significant developmental challenges & is at high risk for Epilepsy.

Naturally, my husband & I were devastated when we learned of the diagnosis. It took us some time to settle into our new "normal" & when the time felt right, we registered with the Dup15q Alliance in hopes of connecting with other affected families. As soon as we were able to join the Alliance's Facebook page & their parent support group, welcome messages flooded in from all over the world & we felt an enormous sense of relief...we really were not alone in this! One of the first posts I saw from the Alliance was for the Chicago Marathon. I'd only been running for less than 1 year but I immediately knew that I had to do this for my baby girl & for all the other littles facing the daily challenges of their diagnosis.

A perfect harmony, the Danny Did Foundation welcomed the Alliance in partnership as a charity team. I feel so grateful for the opportunity to represent both of these organizations & to bring awareness to our causes. Most of all, I am honored to run for my daughter & only hope I can be the embodiment her daily hard work to overcome her challenges.

Danny Did Foundation

Dup15q Alliance